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Patients' Fears of Judgment Hinder Shared Decision-Making


Original Title

Perceived Penalties for Sharing Patient Beliefs with Health Care Providers

  • Medical decision making
  • 4:04 Min.

Overview

This study examined how people, including

laypeople
and doctors, perceive patients who share information about their health, particularly related to diabetes. The researchers looked at how the reasonableness and relevance of the shared information affected people's impressions of the patients.

The key findings show that across all groups, participants rated patients more negatively the more unreasonable their shared beliefs were, especially if the beliefs were central to managing their disease. This pattern held true for both regular people and doctors. Patients who shared true

central statements
were rated more positively than those who shared true
peripheral statements
. Additionally, patients who shared incorrect central statements were penalized more than those who shared incorrect peripheral statements.

The study also found that people's personal experience with diabetes did not make much difference in their ratings, except that those with diabetes experience did not show differences in ratings between central and peripheral unreasonable statements.

The researchers argue that patients should not be penalized for their incorrect beliefs, as regular people are not expected to have medical expertise about their health and can rely on doctors' guidance. However, the study's findings suggest that patients may be hesitant to share information due to fear of being judged, which could be a barrier to the

shared decision-making
process between patients and doctors.

Perceptions of Patients Sharing Incorrect Beliefs

The study found that across all the participants, including laypeople and doctors, people rated patients more negatively the more unreasonable the patients' shared beliefs were, especially if the beliefs were central to managing their diabetes. This pattern held true regardless of whether the participants were regular people or doctors.

Specifically, the researchers found that patients who shared true central statements about their diabetes were rated more positively than those who shared true peripheral statements. On the other hand, patients who shared incorrect central statements were penalized more than those who shared incorrect peripheral statements.

This suggests that people, including doctors, tend to form more negative impressions of patients who share beliefs that are unreasonable and directly relevant to managing their disease. They may view these patients as less competent or informed about their own health.

Differences Based on Personal Experience

The study also looked at whether people's personal experience with diabetes affected their perceptions of patients sharing incorrect information. The researchers found that people with diabetes experience did not differ much from those without in their ratings, except for one key difference.

The group with diabetes experience did not show differences in their ratings between central and peripheral unreasonable statements. In other words, they did not penalize patients more harshly for sharing unreasonable beliefs that were central to disease management, compared to unreasonable peripheral beliefs.

This suggests that having personal experience with a chronic illness like diabetes may make people more understanding of patients who hold incorrect beliefs, even if those beliefs are directly relevant to their care. They may be more willing to give patients the benefit of the doubt, recognizing that laypeople are not expected to have medical expertise.

Implications for Shared Decision-Making

The study's findings have important implications for the shared decision-making process between patients and doctors. The researchers argue that patients should not be penalized for their incorrect beliefs, as regular people are not expected to have a medical school understanding of their health and can rely on doctors' expertise.

However, the study indicates that patients may be hesitant to share information with their doctors due to fear of being judged. This could be a significant barrier to the shared decision-making process, which requires patients to openly share information, even if it conflicts with their doctor's beliefs.

To address this issue, the researchers suggest that doctors should receive training on common

health misconceptions
that circulate in the media and that their patients may believe. This would allow doctors to provide correct information before patients share their own potentially inaccurate beliefs.

Additionally, improving doctors' ability to elicit even the most inaccurate beliefs from their patients could help improve the information flow needed for true shared decision-making between doctors and patients. By creating an environment where patients feel comfortable sharing their beliefs, even if they are incorrect, doctors can better educate patients and help them make healthier choices.

Limitations and Future Research

The study had some limitations, including the use of sparse patient descriptions and not testing participants' diabetes knowledge. Future research could explore how factors like the certainty of a belief and the relationship between the patient and provider may influence information sharing and perceptions.

Despite these limitations, the study provides valuable insights into the perceptions and potential barriers to shared decision-making in healthcare. By understanding how people, including doctors, view patients who share incorrect information, researchers and healthcare providers can work to create more open and collaborative patient-provider relationships, ultimately leading to better health outcomes.